Living with mental illness while parenting a child with chronic health issues is a balancing act. When my son was very young, I tried working as well, and ended up hospitalized. I could only juggle so many roles. Recently I’ve been exhausted. Too involved in attending to my son’s health and educational needs to have any energy left over to write blog posts. Instead of writing I’ve been sharing other people’s content on social media and playing with tools to create inspirational quote memes.
As for my son’s health, the lab results for his immunological workup were negative, which is good news. We will see his immunologist/allergist tomorrow afternoon. Friday he is scheduled for an esophagogastroduodenoscopy (EGD). How’s that for a mouthful. Try saying it three times fast. I can’t even say it once. Hopefully the procedure will rule out gastrointestinal processes, such as hiatal hernia or esophagitis. He’s already being treated for GERD (gastroesophageal reflux disease).
Since he was sick finals week, he is taking incompletes this semester and taking missed quizzes, tests, and finals this summer. My son’s high school agreed to Section 504 accommodations for his illnesses, including gastrointestinal issues and migraines, which led to far too many school absences this past semester. Section 504 of the Rehabilitation Act of 1973 protects individuals with disabilities from discrimination in any program receiving federal funds.
To prepare for my meetings with my son’s school, I read the Special Education Rights and Responsibilities (SERR) Manual by Disability Rights California, which summarizes California and federal law, and met with TASK – Team of Advocates for Special Kids. Thank you, TASK and Disability Rights California!
Disability Rights Resources
Federal Disability Rights Resources
- U.S. Department of Health and Human Services (HHS.gov)
- U.S. Department of Education (ED.gov)